We want patients to help shape the future of neurosurgical audit
NNAP is committed to ensuring that our work focuses on what matters most to patients and their families. We know that data is most powerful when it reflects the things that people actually experience — not just the metrics that are easiest to measure.
Commitment statement - Our commitment to patients
We are in the early stages of building a formal patient and public involvement programme for NNAP. We want to involve patients and carers in deciding which aspects of neurosurgical care we audit, how we present our findings, and what questions we pursue in future research.
This is not tokenistic — we believe that people who have experienced neurosurgical care have a unique perspective that should inform how we design and interpret our work. If you have had brain or spinal surgery, or have cared for someone who has, your experience is genuinely valuable to us.
At present we are inviting people to register their interest. As the programme develops, we will be in touch about specific opportunities to contribute.
What involvement might look like -
Advising on research priorities
Helping us decide which clinical questions matter most — for example, whether our focus should be on mortality, complications, recovery time, or patient experience.
Reviewing how we communicate findings
Giving feedback on our reports and patient-facing materials to make sure they are clear, honest, and genuinely useful to people outside the NHS.
Contributing to quality indicators
Helping define what a good outcome looks like from a patient’s perspective — which may be different from how clinicians or managers measure success.
Participating in our advisory group
As the programme grows, we aim to establish a formal PPIE advisory group that meets regularly and has a direct voice in the work of NNAP.
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